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Friday, July 24, 2015
The article below is written by Dindin, the mother of Knowah. He needs urgent help for his treatment in Munich Germany, the procedure is not available here in the Philippines.
My name is Dindin Sheanna Villena, a housewife from INC Compound Bolbok Batangas City, Philippines. I am the mother of Knowah, a 10-month old angel, a sweet blessing given to me and my husband. We waited almost two years to have Knowah. My husband is an OFW in the Middle East and we are usually miles apart for a year.
Unfortunately, our family is now in dire need of assistance. Ever since Knowah was born, we have been in and out of the hospital because of his condition. At first, not even the doctors and specialists from the Philippines can figure out what was wrong, or why Knowah's immune system is failing and his blood platelet count and hemoglobin was very low and needs transfusion weekly. After several months of on-and-off confinement, a blood sample was sent to the United States of America, and it is to our deep sorrow that when the results came in, Knowah was diagnosed with Wiskott-Aldrich Syndrome (WAS).
Wiskott-Aldrich Syndrome is a rare immunodeficiency disease, and according to research, children suffering from the disease only has a life expectancy of 8-14 years, with the child experiencing health difficulties over the years. We were informed by Dr. Hans D. Ochs of the Center for Immunity and Immunotherapies - Seattle Children's Research Institute that "treatment of choice is early bone marrow transplantation with myeloablative conditioning". In the same mail he said that "this may be difficult to accomplish in the Philippines". He was also suspected for severe multiple allergy and none of any formula here are fine with him.
There were only two babies in Philippines who have WAS and the other one died last November 2014. And he is the only one left in Philippines.
We wrote to you in order to appeal to your good heart. The expenses to be incurred for Knowah’s treatment are quite expensive, especially since the operation is sensitive and will be undertaken in other country. We are approaching different organizations and groups for financial aid for Knowah's treatment, so that he can have a healthier future and a fruitful life.
Attached herewith are the findings of the hospital where Knowah's blood sample was sent.
We do hope you can find it in your heart to help. We will be grateful and we do appreciate whatever aid you can extend.
Sincerely Yours,
Dindin Sheanna A. Villena
Contact Number (0939-7205692)
aguirre.sheanna@gmail.com
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